Resource Links

Adoption

Child Welfare League of America
The organization has membership of over 1,000 public and non-profit agencies. They have resources for adoption and adoption funding on their web site.

Joint Council on International Children's Services
This is the largest and oldest of licensed, non-profit international adoption organizations in the world. The web site has a list of country updates.

Lutheran Adoption Network
International and domestic adoptions for families of all faiths.

National Adoption Center
Hosts a list of waiting children from the nation's foster care system and answers questions about the adoption process.

National Council for Adoption
NCFA is a research, education, and advocacy organization. Their site answers many questions about adoption.

North American Council on Adoptable Children
NACAC is an organization committed to meeting the needs of waiting children and the families who adopt them. The web site has very clearly written tips on adoption.

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Advocacy and Government

Access Watch
Access Watch is an information clearinghouse designed to inform lawmakers about how changes to Medicare reimbursements caused by the Medicare Modernization Act (MMA) are affecting patient access to community cancer care. The site has articles relevant to the topic and encourages the user to speak up about how the policy impacts them.

Association of Clinical Oncology
Association of Clinical Oncology website can assist survivors and their families in keeping up with the latest on legislation which could impact them. It also demonstrates how to become a voice for change.

C-Change
C-Change is a national organization of cancer leaders from across all areas of the cancer community. The website has news relevant to cancer patients and survivors and opportunities to impact legislative change.

The Children's Cause for Cancer Advocacy
The Children's Cause brings the voices of childhood cancer survivors and their families to national policies which will effect them. Updates on relevant policies and issues are available on the website.

Cure Search-National Childhood Cancer Foundation
This site contains information on issues and legislation, elected officials, and information on how to become a more active advocate. Most information is also available in Spanish.

Families USA
1-202-628-3030
Newsletters, guides, kits, tips and related links on improving advocacy skills. Includes information on how to communicate with elected officials.

Hope Street Kids
Lists the Do’s and Don’ts of being an effective childhood cancer advocate.

The Lance Armstrong Foundation-Livestrong
1-512-236-8820
Provides links to Capital Hill and other advocacy efforts.

National Coalition for Cancer Survivorship
1-301-650-9127
The Survivor’s Bill of Rights and a guide for becoming an advocate are available on-line.

Outlook
1-608-263-6200
Provides links to Federal and State Programs regarding financial assistance and insurance.

Patient Advocate Foundation
800-532-5274
Provides an electronic newsletter regarding current advocacy issues.

United States House of Representatives
Let your voice make a difference by contacting your state representative or other representatives.

United States Senate
Let your voice make a difference by contacting your state senators or other senators.

Young Survival Coalition
An international non-profit organization dedicated to meeting the issues and concerns unique to young women and breast cancer. The site has advocacy tips.

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Appearance

2bMe
Look Good... Feel Better is a website for teens with information on dealing with issues related to appearance, social life and nutritional effects of cancer.

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Camps and Activities

Big Sky Kids
A week long camp for cancer survivors ages 16-23. The camp is for Montana children, but has a limited number of out of state slots.

Camp Mak-a-Dream
A free young, adult one week conference (18-25) where you can learn, share and discuss with other childhood cancer survivors. The camp is in Missoula, Montana.

Camp Sunshine
Families of cancer patients may apply to attend a weeklong camp at no charge.

First Descents
A free, seven day kayak camp in Vail, Colorado for young adults with cancer ages 15-25.

Planet Cancer
Events and research opportunities for cancer survivors.

Speciallove
Weekend camp in Winchester, VA for young adult (18-25) cancer patients and long-term survivors. Camp songs are available on the site.

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General Education

Cancervive
Cancervive is a not for profit organization founded by childhood cancer survivor, Susan Nessim. The organization provides support, public education and advocacy for childhood cancer survivors. The site also has inspirational stories of survivors.

Candlelighters
Candlelighters provides education, support and advocacy for survivors, families and professionals. Their quarterly newsletter is on-line.

Curetoday
Magazine that provides cancer updates, research, and education.

Friends of Cancer Research
The organization raises awareness and provides public education on cancer research to accelerate the nation's progress toward prevention and treatment of cancer.

National Coalition for Cancer Survivorship
Serves as a clearinghouse for information on services and material for survivors. The organization advocates for the rights and interests of cancer survivors. They offer a series of audio tapes, entitled The Survivors Toolkit, to help people live with cancer.

Oncolink
Information and inspiration concerning the life-long health care, emotional and social needs of cancer survivors.

People Living with Cancer
This is the patient information website of the American Society of Clinical Oncology. It contains cancer research updates, medical information and coping ideas.

Planet Cancer
List of news and recent articles relevant to survivorship.

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Employment

Americans with Disabilities Act (ADA)
1-800-514-0301
Information on The Americans with Disabilities Act and current issues regarding disability rights.

Cancer Care, Inc.
1-800-813-HOPE
Cancer support and education through teleconferences and distance learning programs.

Department of Labor/ FMLA
1-866-4-USA-DOL
Information about the Family and Medical Leave Act and federal employment laws.

Equal Employment Opportunities Commission
1-800-669-4000
Information about EEO Laws, how to file a discrimination charge and statistical information.

FindLaw
1-800-455-4565
Enables users to find lawyers in a particular area who handle specific types of lawsuits.

Heal: Living Well With Cancer
Magazine that focuses on the quality of life after diagnosis and treatment.

Job Accommodation Network
1-800-526-7234
Provides free information on how employers can accommodate people with disabilities.

Project Action
1-800-659-6428
Resources, training and technical assistance for those protected by the American Disabilities Act.

National Coalition for Cancer Survivorship
1-888-YES-NCCS
Provides a resource guide of employment rights, as well as support when dealing with the effects of cancer.

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Emotional Support

American Cancer Society
800-227-2345
A community of online survivors and their families with both chats and a message board. The community consists of adult and childhood cancer survivors.

Association of Cancer Online Resources
Provides a free, unmoderated support for cancer patients and their support people.

Cancercare
Cancercare has many Online Forums, including a recently added forum, dealing with Physical Intimacy, for people living with cancer and their partners. The forum is professionally moderated and one of the only sites which deals specifically with this topic.

ChaiLifeline
1-800-343-2527
ChaiLifeline is a nonprofit organization meeting the psychological needs of medically ill Jewish children and their families.
Teens can connect with other teens as well as share inspirational stories and pictures.

Grouploop
Grouploop has professionally mentored online support groups for educational and informational purposes, as well as a discussion board.

Oncochat
Online peer support for cancer patients, friends and families.

Osteosarcoma Online
This website contains information on dealing with the emotions that come with a cancer diagnosis as well as information on making treatment decisions.

Steps for Living
This web site features a group of musicians that have been touched by cancer. Several of them are childhood cancer survivors. The website and music promotes enhancing cancer survivorship through outreach, empowerment and philanthropy.

Teens Living with Cancer
Teens Living with Cancer is a site where teens can connect with other teens as well as share inspirational stories and pictures.

The Ulman Fund for Young Adults
888-393-3865
This is a connection site for survivors, parents and young adults with cancer. There is a mix of childhood cancer survivors and survivors diagnosed as a young adult. The topics are varied and you do not have to join to review the discussion format.

The Wellness Group
On-line facilitated support for cancer patients 21 and older. The groups meet at a scheduled date and time.

Vital Options International
A support site which focuses on unique clinical and psychosocial needs of young adults ages 17-mid 40’s.

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Health and Prevention

American Institute for Cancer Research
This is the only website dedicated to diet and its relationship to cancer and cancer prevention.

American Lung Association
Tips on how and why to quit smoking.

Columbia-Integrative Therapies Program for Children with Cancer
This unique program is in the forefront of research on alternative medicine. The web site contains information on the relationship between diet and cancer and includes nutritious recipes. It also summarizes research information related to alternative medicines and diet.

Diana Dyer, MS, RD-Cancer and Nutrition Specialist
As a childhood cancer survivor and three time survivor of cancer as an adult, Diana has personal and professional experience with the impact of nutrition and cancer. Her web site contains nutrition information, healthy recipes and helpful links.

Oncolink
This professional and well organized site contains the most recent diet information during and after treatment.

The Sun Protection Shop
This site has photographs, descriptions and warning signs of skin cancer.

Tobacco Free.org
This not for profit group offers tips on quitting smoking.

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Insurance

American Association of Health Plans
American Association of Health Plans provides links to many of the nation's primary health care plans as well as current information relating to health care policy including High Risk Pools.

American Speech-Language-Hearing Association
Offers guidelines on obtaining and evaluating insurance coverage especially relating to hearing and speech-language services.

Free Advice
Free Advice offers information and free legal advice, from a large question and answer database, on many issues including health insurance.

Health Care Choices
Health Care Choices is a not-for-profit corporation dedicated to educating the public about the nation's health care system. The site contains comprehensive descriptions of insurance plans, where to get insurance, what to do if claims are not paid on time and getting a second opinion for cancer.

Health Hippo
Health Hippo is a collection of policy and regulatory material related to health care. It is comprehensive, up to date and relevant to many issues involving childhood cancer.

Healthinsuranceinfo.net
Georgetown Policy Health Institute has written a wonderful guide for consumers on obtaining and maintaining insurance. The guide is viewable on line and the site offers a state by state search for insurance guidelines.

National Association of Insurance Commissioners
Provides information and contacts on state health insurance programs.

National Coalition for Cancer Survivorship
Provides an informational book for adult survivors on health insurance. The book is also available in Spanish.

Patient Advocate Foundation
Patient Advocate Foundation is a national non-profit organization that offers patients free assistance in mediating with insurance companies to assure access to care, maintenance of employment and preservation of their financial stability. The site also has up to date insurance news.

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Medical

Blood and Marrow Transplant Resources
The website offers a comprehensive list of resources for transplant patients and survivors, as well as a detailed explanation of bone marrow transplantation.

Cancer Portfolio
An informative database containing information on various types of cancer research.

Cancer Symptoms.org
This site is organized by the Oncology Nurses Society. The site deals with six common side effects of cancer and treatment: fatigue, anorexia, pain, depression, neutropenia and cognitive dysfunction. It explains the causes and effects and "what to do" about the side effects.

Cancer Web
This cancer resource website includes an extensive online medical dictionary.

The Center for Young Women's Health-Children's Hospital Boston
Reproductive questions and answers for cancer survivors. The guide is in Spanish and English and geared to answer the questions of female teenage cancer survivors.

Chemo Care
Scott Hamilton's chemotherapy site offering chemo information for cancer patients and their families, caregivers and friends. Outlines all you should know about chemotherapy and cancer treatment.

COG Institutions
Lists the hospitals which are members of the Clinical Oncology group in the United States.

Columbia-Integrative Therapies Program for Children with Cancer
This unique program is in the forefront of research on alternative medicine. The web site contains information on the relationship between diet and cancer and includes nutritious recipes. It also summarizes research information related to alternative medicines and diet.

fertileHOPE
This is a comprehensive website which deals with infertility issues for cancer survivors. The website compares various fertility methods and has up to date information on pre and post-treatment options.

Office of Cancer Survivorship
Houses the most up to date research on survivorship issues.

Stoppain.org
This site deals with fatigue issues and solutions.

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Scholarships and Education

American Cancer Society
College scholarships to survivors in various states.

Andre Sobel River of Life Foundation
310-276-7111
An award of $5,000 and honorable mentions of $1,000 are given to United States citizens who are survivors and under the age of 21. This is an essay competition.

Ashley Tamburri Scholarship
301-694-6414
Awards are given to high school seniors from several Maryland counties a four-year renewable scholarship.

FinAid-Guide to Financial Aid
Information about college scholarships, loans and other types of financial aid.

The George Washington University Heath Resource Center
A national clearinghouse for postsecondary education options and outcomes for individuals with intellectual disabilities.

National Dissemination Center for Children with Disabilities
800-695-0285
Contains information on each states vocational and educational programs as well as federal government contact information.

Outlook-Life Beyond Childhood Cancer
Detailed information on the effects of childhood cancer treatment on learning and school performance.

Pacific West Cancer Fund
320 Andover Park East, Suite 275
Seattle, WA 98188
Stephanie Cunningham, Donald Traver (fund administer)
There is no website, but the financial office at any college or university should be able to provide this scholarship information.

Patient Advocate Foundation
800-532-5274
This site has criteria and a downloadable application for a $5,000 annual scholarship for cancer survivors.

The SAMFund
On-line inquiry about grants and scholarships. The SAMFund assist young adults transitioning into the adult world by providing financial assistance.

Scholarship Resource Network Express
Free scholarship search.

The Ulman Fund for Young Adults
This site has downloadable applications for two $1000 scholarships.

Wrightslaw
Updated and accurate information on special education laws.

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Specific Scholarships

The Ashley Foundation, Inc.
301-694-6414
The criteria and application are available at this site. The scholarship is for Maryland residents.

Brain Tumor Foundation for Children, Inc.
404-252-4107
Financial assistance and scholarships for survivors of pediatric brain tumor or spinal cord tumors. Applicants must be Georgia residents.

Cancer Federation, Inc.
P.O. Box 1298
Banning, CA 92220
Scholarships are for biology majors interested in research. The scholarships are given at various colleges and universities.

Cancer Survivor Fund
281-437-7142
The site has the criteria and application on-line. The scholarship is for Texas residents.

Carti (Dennis J. Jungmeyer Scholarship)
800-482-8561 x616
Scholarship is limited to people treated at the Central Arkansas Radiation Institute (CARTI).

Hawaii Children's Cancer Foundation
808-528-5161
The scholarship is for young adult survivors of childhood cancer who were treated in the state of Hawaii.

Jay's World
516-889-0583
The scholarship is awarded to a person who has been cured of cancer, in remission or able to attend college while in treatment and must be a resident of New York.

Jeff Apodaca Celebration of Life Scholarship
505-272-1333
Awarded to pediatric cancer survivors who were treated at one of the University of New Mexico Hospitals and who are attending a New Mexico college or university.

Jonathan Jackson Cancer Survivors Scholarship
888-375-8117
Awarded to cancer survivors and current cancer patients from North Carolina by the Mount Airy Community Foundation.

Michael A. Hunter Memorial Scholarship
Two $5,000 scholarships are awarded to leukemia patients or children of a non-surviving leukemia patient.

Pediatric Brain Tumor Foundation
The foundation offers scholarships for brain tumor survivors.

The Ryan Mullaly Second Chance Fund
609-737-1800
Candidates must be United States citizens who were diagnosed with cancer between the ages of 13 and 20.

SCAPON Childhood Cancer Survivor Educational Scholarship
909-558-8400
Recipient must be diagnosed with cancer before age 21 and a resident of Southern California. The award is given through the Southern California chapter of the Association of Pediatric Oncology Nurses (SCAPON).

Special Love, Inc
540-667-3774
Recipients must be past and/or current recipients of programs sponsored by Special Love, Inc. in the Mid-Atlantic region.

Stephen T. Marchello Scholarship Foundation
303-886-5018
The Stephen T. Marchello Scholarship Foundation provides scholarships for post secondary education to Colorado high school survivors of childhood cancer.

SuperSibs!
866-444-7427
This site has criteria and application for two $5,000 scholarships to be given to siblings of childhood cancer survivors.

The Susan Fund, Inc.
203-226-4145
Scholarships for Fairfield County, CT residents who have been diagnosed with cancer.

Tim & Tom Gullikson Foundation
1-888-GULLIKSON
Scholarships for brain tumor patients/survivors and/or children of brain tumor patients/survivors.

Young Cancer Survivor Scholarship Program
800-877-1710 x221
Sponsored by the American Cancer Society. The information and application for the renewable $1000 scholarship for Michigan and Indiana residents is on this site.

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