Resources
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Adoption |
Advocacy and Government |
Appearance |
Camps and Activities |
Disabilities |
General Education |
Emotional Support |
Employment |
Health and Prevention |
Insurance |
Medical |
Scholarships and Education |
Specific Scholarships |
AdoptionChild Welfare League of America The organization has membership of more than 1,000 public and nonprofit agencies. It has resources for adoption and adoption funding on their Web site. Joint Council on International Children's Services This is the largest and oldest licensed nonprofit international-adoption organizations in the world. The Web site lists updates by country. Lutheran Adoption Network International and domestic adoptions for families of all faiths. National Adoption Center Hosts a list of waiting children from the nation's foster-care system and answers questions about the adoption process. National Council for Adoption NCFA is a research education, and advocacy organization. Its site answers many questions about adoption. North American Council on Adoptable Children NACAC is an organization committed to meeting the needs of waiting children and the families who adopt them. The Web site has very clearly written tips on adoption. Back To Top Advocacy and GovernmentAccess Watch Access Watch is an information clearinghouse designed to inform lawmakers about how changes to Medicare reimbursements caused by the Medicare Modernization Act (MMA) are affecting patient access to community cancer care. The site has articles relevant to the topic and encourages the user to speak up about how the policy impacts them. Alliance for Childhood Cancer (ACC) 1-703-299-1050 ACC represents more than 20 patient-advocate groups as well as professional medical and scientific organizations. The organization's stance on key legislative issues pertaining to childhood cancer is available through the Web site or by contacting the Alliance. American Society of Clinical Oncology (ASCO) 1-703-299-0150 asco@asco.org ASCO informs survivors and their families about the latest cancer legislation. It also provides information about how to become a voice for change. Candlelighters Childhood Cancer Foundation 1-800-366-2223 staff@candlelighters.org Candlelighters offers a voice for pediatric cancer families and survivors to the general public, the medical community, government, schools, employers and the media. C-Change C-Change is a national organization of cancer leaders from across all areas of the cancer community. The website has news relevant to cancer patients and survivors and opportunities to impact legislative change. The Children's Cause for Cancer Advocacy TThe Children's Cause brings the voices of childhood cancer survivors and their families to national policies which affect them. Updates on relevant policies and issues are available on the Web site Cure Search-National Childhood Cancer Foundation This site contains information on issues and legislation, elected officials and on how to become a more active advocate. Most information is also available in Spanish. Families USA 1-202-628-3030 Newsletters, guides, kits, tips and related links on improving advocacy skills. Includes information on how to communicate with elected officials. Hope Street Kids Lists the 'dos and don'ts' of effective childhood-cancer advocacy. The Lance Armstrong Foundation-Livestrong 1-512-236-8820 Provides links to Capital Hill and other advocacy efforts. National Coalition for Cancer Survivorship 1-301-650-9127 The Survivor's Bill of Rights and a guide to becoming an advocate are available online. Outlook 1-608-263-6200 Provides links to federal and state programs concerned with financial assistance and insurance. Patient Advocate Foundation 800-532-5274 Provides an electronic newsletter about current advocacy issues. United States House of Representatives Let your voice make a difference by contacting your state representative or other political representatives. United States Senate Let your voice make a difference by contacting your own state senators or those of other states. Young Survival Coalition An international nonprofit organization dedicated to meeting the issues and concerns unique to young breast-cancer survivors. The site has advocacy tips. Back To Top Appearance2bMe Look Good... Feel Better is a Web site for teens with information on dealing with issues related to appearance, social life and nutritional effects of cancer. Look Good Feel Better 1-800-395-5665 This program is designed to assist people of all ages in dealing with issues related to appearance, social life and the nutritional effects of cancer. The Web site is available in Spanish and English Back To Top Camps and ActivitiesBig Sky Kids A weeklong camp for cancer survivors ages 16-23. The camp is for Montana children but enrolls a limited number of out-of-state slots. Camp Mak-a-Dream A free young, adult one-week conference (18-25) where you can learn, share and discuss with other childhood cancer survivors. The camp is in Missoula, Montana. Camp Sunshine Families of cancer patients may apply to attend a weeklong camp at no charge. First Descents A free, seven day kayak camp in Vail, CO for young adults with cancer ages 15-25. Planet Cancer Events and research opportunities for cancer survivors. Speciallove Weekend camp in Winchester, VA, for young adult (18-25) cancer patients and long-term survivors. Camp songs are available on the site. Back To Top DisabilitiesABLEDATA (800) 227-0216 This assistive-technology organization provides information about products and rehabilitation equipment. ACT Inc. (319) 337-1332 This organization offers special testing with extended time and in alternative formats for people with disabilities. ARCH National Respite Networ This organization provides national respite-locator services to help caregivers and professionals identify respite-care providers in their community. The National Respite Coalition is an additional service that advocates for preserving and promoting respite-care programs at the national, state and local levels. Center for Law and Education (617) 451-0855 CLE strives to make the right of quality education a reality for all students throughout the nation and to help enable communities to address their own public-education problems effectively, with an emphasis on assistance to low-income students and communities. Clearinghouse on Disability Information (202) 245-7307 The Clearinghouse provides information to people with disabilities or to anyone requesting it. Conducts research and provides documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs. Disability Rights Education & Defense Fund (800) 348-4232 The mission is to advance the civil and human rights of people with disabilities through legal advocacy, training, education and public-policy and legislative development. Independent Living Research Utilization (ILRU) Founded in 1975, ILRU has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act and home- and community-based services and health issues for people with disabilities. National Association of Protection and Advocacy Systems (202) 408-9514 Through training and technical assistance, legal support, and legislative advocacy, it works to create a society in which people with disabilities are afforded equal opportunity and full participation, by exercising choice and self-determination. National Center for Learning Disabilities (888) 575-737 Works to offer solutions and increase opportunities for all individuals with learning disabilities. Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities in achieving their full potential. National Clearinghouse on Postsecondary Education for Individuals with Disabilities (202) 973-0904 It provides information about educational support services, policies, procedures, adaptations and opportunities at American campuses, career-technical schools and other postsecondary training entities. National Easter Seal Society (800) 221-6827 It helps individuals with disabilities and special needs, and their families, through child-development centers, physical rehabilitation and job training. National Dissemination Center for Children with Disabilities (NICHCY) (800) 695-0285 It serves the nation as a central source of information on disabilities, IDEA, No Child Left Behind and research-based information on effective educational practices. National Library Service for the Blind and Physically Handicapped (NLS) (888) 657-7323 Through a national network of cooperating libraries, NLS administers a free library program of Braille and audio materials, circulated to eligible borrowers in the U.S. by postage-free mail. National Rehabilitation Information Center (800) 346-2742 It provides direct, personal and high-quality information to the disability and rehabilitation community. NARIC's Web site offers online publications, searchable databases and timely reference and referral data. Neal Pike Institute of Law and Disability (617) 353-2904 The Pike Institute at Boston University School of Law supports education and research in the area of disability law. The Web site contains a monthly online newsletter, information regarding the legal definition of disability in recent court cases and conference and event updates. Back To Top General EducationACT Inc. (319) 337-1332 This organization offers special testing with extended time and in alternative formats for people with disabilities. American Cancer Society (ACS) 1-800-ACS-2345 ACS provides information on clinical trials, research updates, resources and preventative health. The 24-hour helpline answers questions about any cancer-related topic. Cancer News The Web site contains the latest articles on cancer, treatment and related areas. Cancervive Cancervive is a not for profit organization founded by childhood cancer survivor, Susan Nessim. The organization provides support, public education and advocacy for childhood cancer survivors. The site also has inspirational stories of survivors. Candlelighters Childhood Cancer Foundation 1-800-366-2223 staff@candlelighters.org Candlelighters provides education, support and advocacy for survivors, families and professionals. Its quarterly newsletter is online. Center for Law and Education (617) 451-0855 CLE strives to make the right of quality education a reality for all students throughout the nation and to help enable communities to address their own public-education problems effectively, with an emphasis on assistance to low-income students and communities. The Children's Defense Fund (800) 233-1200 Its "Leave No Child Behind" mission is to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood, with the help of caring families and communities. Clearinghouse on Disability Information (202) 245-7307 The Clearinghouse provides information to people with disabilities or to anyone requesting it. Conducts research and provides documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs. Curetoday Magazine that provides cancer updates, research and education. Disability Rights Education & Defense Fund (800) 348-4232 The mission is to advance the civil and human rights of people with disabilities through legal advocacy, training, education and public-policy and legislative development. Friends of Cancer Research The organization raises awareness and provides public education on cancer research to accelerate the nation's progress toward cancer prevention and treatment. MyLion.org This Web site offers helpful information on pediatric cancer and service/learning projects designed to help kids battling cancer and their families. National Center for Learning Disabilities (888) 575-737 Works to offer solutions and increase opportunities for all individuals with learning disabilities. Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities in achieving their full potential. National Coalition for Cancer Survivorship Serves as a clearinghouse for information on services and material for survivors. The organization advocates for the rights and interests of cancer survivors. They offer a series of audio tapes, entitled "The SurvivorsŐ Toolkit," to help people live with cancer. National Dissemination Center for Children with Disabilities (NICHCY) (800) 695-0285 It serves the nation as a central source of information on disabilities, IDEA, No Child Left Behind and research-based information on effective educational practices. National Library Service for the Blind and Physically Handicapped (NLS) (888) 657-7323 Through a national network of cooperating libraries, NLS administers a free library program of Braille and audio materials, circulated to eligible borrowers in the U.S. by postage-free mail. Oncolink Information and inspiration concerning the lifelong healthcare, emotional and social needs of cancer survivors. People Living with Cancer This is the patient-information Web site of the American Society of Clinical Oncology. It contains cancer research updates, medical information and coping ideas. Planet Cancer List of news and recent articles relevant to survivorship. The Council for Exceptional Children (866) 915-5000 CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice. Back To Top EmploymentAmericans with Disabilities Act (ADA) 1-800-514-0301 Information on The Americans with Disabilities Act and current issues regarding disability rights. Cancer Care, Inc. 1-800-813-HOPE Cancer support and education through teleconferences and distance learning programs. Department of Labor/ FMLA 1-866-4-USA-DOL Information about the Family and Medical Leave Act and federal employment laws. Equal Employment Opportunities Commission 1-800-669-4000 Information about EEO Laws, how to file a discrimination charge and statistical information. FindLaw 1-800-455-4565 Enables users to find lawyers in a particular area who handle specific types of lawsuits. Heal: Living Well With Cancer Magazine that focuses on the quality of life after diagnosis and treatment. Job Accommodation Network 1-800-526-7234 Provides free information on how employers can accommodate people with disabilities. Project Action 1-800-659-6428 Resources, training and technical assistance for those protected by the American Disabilities Act. National Coalition for Cancer Survivorship 1-888-YES-NCCS Provides a resource guide of employment rights, as well as support when dealing with the effects of cancer. Back To Top Emotional SupportAmerican Cancer Society 800-227-2345 A community of online survivors and their families with both chats and a message board. The community consists of adult and childhood cancer survivors. Association of Cancer Online Resources Provides free unmoderated support for cancer patients and their support people. Cancer Care, Inc. Cancercare has many online forums, including a recently added Dealing with Physical Intimacy, for people living with cancer and their partners. The forum is professionally moderated and one of the only sites which deals specifically with this topic ChaiLifeline 1-800-343-2527 ChaiLifeline is a nonprofit organization meeting the psychological needs of medically ill Jewish children and their families. Teens can connect with other teens as well as share inspirational stories and pictures. fertileHOPE 1-888-994-HOPE fertileHOPE deals with infertility issues for cancer survivors. The Web site compares various fertility methods and has up to date information on pre and post treatment options. Grouploop Grouploop has professionally mentored online support groups for educational and informational purposes, as well as a discussion board. Oncochat Online peer support for cancer patients, friends and families. Osteosarcoma Online This Web site contains information on dealing with the emotions that come with a cancer diagnosis, as well as information on making treatment decisions. Teens Living with Cancer Teens Living with Cancer is a site where teens can connect with other teens as well as share inspirational stories and pictures. The Ulman Fund for Young Adults 888-393-3865 This is a connection site for survivors, parents and young adults with cancer. There is a mix of childhood cancer survivors and survivors diagnosed as a young adult. The topics are varied and you do not have to join to review the discussion format. The Wellness Group Online, facilitated support for cancer patients 21 and older. The groups meet at a scheduled date and time. Vital Options International A support site focusing on unique clinical and psychosocial needs of young adults ages 17 to mid 40s. Back To Top Health and PreventionAmerican Institute for Cancer Research This is the only Web site dedicated to diet and its relationship to cancer and cancer prevention. American Lung Association Tips on how and why to quit smoking. Columbia-Integrative Therapies Program for Children with Cancer This unique program is in the forefront of research on alternative medicine. The web site contains information on the relationship between diet and cancer and includes nutritious recipes. It also summarizes research information related to alternative medicines and diet. Diana Dyer, MS, RD-Cancer and Nutrition Specialist As a childhood cancer survivor and three time survivor of cancer as an adult, Diana has personal and professional experience with the impact of nutrition and cancer. Her web site contains nutrition information, healthy recipes and helpful links. Oncolink This professional and well organized site contains the most recent diet information during and after treatment. The Sun Protection Shop This site has photographs, descriptions and warning signs of skin cancer. Tobacco Free.org This nonprofit group offers tips on quitting smoking. Back To Top InsuranceAmerican Association of Health Plans American Association of Health Plans provides links to many of the nation's primary health care plans as well as current information relating to health care policy including High Risk Pools. American Speech-Language-Hearing Association Offers guidelines on obtaining and evaluating insurance coverage especially relating to hearing and speech-language services. Free Advice Free Advice offers information and free legal advice, from a large question and answer database, on many issues including health insurance. Health Care Choices Health Care Choices is a not-for-profit corporation dedicated to educating the public about the nation's health care system. The site contains comprehensive descriptions of insurance plans, where to get insurance, what to do if claims are not paid on time and getting a second opinion for cancer. Health Hippo Health Hippo is a collection of policy and regulatory material related to health care. It is comprehensive, up to date and relevant to many issues involving childhood cancer. Healthinsuranceinfo.net Georgetown Policy Health Institute has written a wonderful guide for consumers on obtaining and maintaining insurance. The guide is viewable on line and the site offers a state by state search for insurance guidelines. National Association of Insurance Commissioners Provides information and contacts on state health insurance programs. National Coalition for Cancer Survivorship Provides an informational book for adult survivors on health insurance. The book is also available in Spanish. Patient Advocate Foundation Patient Advocate Foundation is a national non-profit organization that offers patients free assistance in mediating with insurance companies to assure access to care, maintenance of employment and preservation of their financial stability. The site also has up to date insurance news. Back To Top MedicalBlood and Marrow Transplant Resources The website offers a comprehensive list of resources for transplant patients and survivors, as well as a detailed explanation of bone marrow transplantation. Cancer Portfolio An informative database containing information on various types of cancer research. Cancer Symptoms.org This site is organized by the Oncology Nurses Society. The site deals with six common side effects of cancer and treatment: fatigue, anorexia, pain, depression, neutropenia and cognitive dysfunction. It explains the causes and effects and "what to do" about the side effects. Cancer Web This cancer resource website includes an extensive online medical dictionary. The Center for Young Women's Health-Children's Hospital Boston Reproductive questions and answers for cancer survivors. The guide is in Spanish and English and geared to answer the questions of female teenage cancer survivors. Chemo Care Scott Hamilton's chemotherapy site offering chemo information for cancer patients and their families, caregivers and friends. Outlines all you should know about chemotherapy and cancer treatment. COG Institutions Lists the hospitals which are members of the Clinical Oncology group in the United States. Columbia-Integrative Therapies Program for Children with Cancer This unique program is in the forefront of research on alternative medicine. The web site contains information on the relationship between diet and cancer and includes nutritious recipes. It also summarizes research information related to alternative medicines and diet. fertileHOPE This is a comprehensive website which deals with infertility issues for cancer survivors. The website compares various fertility methods and has up to date information on pre and post-treatment options. Office of Cancer Survivorship Houses the most up to date research on survivorship issues. Stoppain.org This site deals with fatigue issues and solutions. Back To Top Scholarships and EducationAmerican Cancer Society College scholarships to survivors in various states. Andre Sobel River of Life Foundation 310-276-7111 An award of $5,000 and honorable mentions of $1,000 are given to United States citizens who are survivors and under the age of 21. This is an essay competition. Ashley Tamburri Scholarship 301-694-6414 Awards are given to high school seniors from several Maryland counties a four-year renewable scholarship. Carolyn's Compassionate Children childrencc@aol.com Carolyn Rubenstein, 22-year-old Duke University graduate, founded this nonprofit in 1999. This is the fifth year of the scholarship program for childhood cancer survivors. A college-scholarship committee selects recipients based on personal character, financial need, successful completion of high school and community service. Awards are $1,000 to be used for college education. FinAid-Guide to Financial Aid Information about college scholarships, loans and other types of financial aid. The George Washington University Heath Resource Center A national clearinghouse for postsecondary education options and outcomes for individuals with intellectual disabilities. National Collegiate Cancer Foundation 717-215-0943 $1,000 competitive awards are given based upon four criteria: financial need, quality of essay and recommendations, displaying a "Will Win" attitude, and overall story of cancer survivorship. National Dissemination Center for Children with Disabilities 800-695-0285 Contains information on each states vocational and educational programs as well as federal government contact information. Outlook-Life Beyond Childhood Cancer Detailed information on the effects of childhood cancer treatment on learning and school performance. Pacific West Cancer Fund 320 Andover Park East, Suite 275 Seattle, WA 98188 Stephanie Cunningham, Donald Traver (fund administer) There is no website, but the financial office at any college or university should be able to provide this scholarship information. Patient Advocate Foundation 800-532-5274 This site has criteria and a downloadable application for a $5,000 annual scholarship for cancer survivors. SCAPON Childhood Cancer Survivor Educational Scholarship 909-558-8400 Recipient must be diagnosed with cancer before age 21 and a resident of Southern California. The award is given through the Southern California chapter of the Association of Pediatric Oncology Nurses (SCAPON). The SAMFund On-line inquiry about grants and scholarships. The SAMFund assist young adults transitioning into the adult world by providing financial assistance. Scholarship Resource Network Express Free scholarship search. The Ulman Fund for Young Adults This site has downloadable applications for two $1000 scholarships. Wrightslaw Updated and accurate information on special education laws. Back To Top Specific Scholarships |
