Long-Term Follow-Up Clinics
| The following is a list of late-effects clinics that follow the Pediatric Oncology Group Resource guidelines for childhood cancer survivors. The benefit of attending a late-effects clinic is twofold. Your attendance not only ensures your survivorship needs are met, but also assists future survivors by providing a research base. If you can not attend a late-effects clinic, see the medical section for information to provide your health care team. Additional medical providers can be found at the Children's Oncology Group Web site. This list was revised June, 2008. |
Alabama
Taking on Life After Cancer Clinic
Children’s Hospital of Alabama
1600 7th Avenue South
ACC 512
Birmingham, Alabama 35233
205-939-9285
Nurse Clinician: Jodi Carlee, RN, MSN
Supervising Physician: Kimberly F. Whelan, MD
Criteria: Two years off treatment.
Time: Meets every Friday.
Arizona
Cardon Children’s Medical Center
Banner Pediatric Specialists Hematology/Oncology
1432 S. Dobson Rd. # 107
Mesa, AZ 85202
Contact: Laurie Smith, RN, MSN, PCNS-BC, CPON
Contact number: 480-833-1123
Physician: Steve Abella, MD
Criteria: Three years off treatment
Times: Meets the first and third Monday, after October 4 switch to first and third Tuesday.
Phoenix Children’s Hospital
Long Term Follow-up Clinic
1919 E. Thomas Rd.
Phoenix, AZ 85016
Contact: Britt Olson RN, MSN, CPNP or Kelli Fischdeck RN, BSN
Contact number: 602-546-0920
Physician: Paul Baranko MD
Criteria: Two years post-treatment or five years after diagnosis. There is no age limit.
Times: Meets the first 3 Thursdays each month.
California
Children's Hospital, Los Angeles
LIFE Survivorship and Transition Program
Children's Center for Cancer and Blood Diseases
4650 Sunset Blvd., Mailstop #54
Los Angeles, CA 90027
Contact: 323-361-8953, toll free 877-222-LIFE (5433), e-mail LIFE@chla.usc.edu
Medical Director: David R. Freyer, DO, MS
Criteria: See both child and adult survivors.
Children's Hospital of Orange County
455 Main St.
Orange, CA 92868
Contact: Janet Hager
Contact number: 714-289-4181
Physician: Lillibeth Torno, MD
Criteria: Patients up to age 21 and two years off of therapy.
Times: Every Thursday afternoon.
City of Hope National Medical Center
Childhood Cancer Survivor Program
Center for Cancer Survivorship
Division of Population Science
1500 E. Duarte Rd.
Duarte, CA 91010
Contact: Wendy Landier, RN, MSN, CPNP, CPON
Contact number: 626-256-4673
Physician: Smita Bhatia, MD, MPH
Criteria: Five years after diagnosis and two years after treatment completion. There is no age limit.
Time: Meets on Wednesday mornings and Friday afternoons.
Lucile Packard Children's Hospital at Stanford
Long Term Follow-Up Clinic
725 Welch Rd.
Palo Alto, CA 94304
Contact: Jaye Palm-Leis
Contact number: 650-723-0892
Physician: Arun Rangaswami, MD
Criteria: Five years after treatment completion and no age limit.
Time: Tuesdays and every other Friday.
Colorado
Denver Children's Hospital
H.O.P.E. (Helping Oncology Patients Excel) Clinic
1056 East 19th Ave, B115
Denver, CO 80218
Contact: Genevieve Sylvain, RN
Contact number: 720-777-5441
Physician: Brian Greffe, M.D.
Criteria: Five years after diagnosis and two years since completion of treatment. There is no age limit.
Times: Third Thursday of the month for oncology survivors. Fourth Thursday of the month for BMT survivors.
Connecticut
HERO'S of Childhood Cancer Clinic (Health Education Research and Outcomes for Survivors)
Dept. of Pediatrics
Yale University School of Medicine
333 Cedar St., LMP 2073
New Haven, CT 06525
Contact: Kim Trotta, R.N.
Contact Number: 203-785-4640
Primary Physician: Nina Kadan-Lottick, M.D., M.S.P.H.
Criteria: Diagnosed before age 21 and five years after treatment completion.
Time: Meets the first and third Tuesday each month.
Florida
Arnold Palmer Hospital for Children/M.D. Anderson Cancer Center-- Orlando
FACT (Follow-up After Cancer Treatment) Long-term Follow-up Clinic
Center for Children’s Cancer and Blood Disorders
92 W. Miller St., MP # 318
Orlando, Florida 32806
Contact: Liana Bristol-Cruz, M.S., ARNP, FNP-BC
Contact number: 321-841-8588 Fax: 321-841-8560
Physicians: Vincent Giusti, M.D.; Don Eslin, M.D.; Robert Sutphin, M.D.; & Alejandro Levy, M.D.
Criteria: Children and adult survivors of childhood cancer who are at least 2 years off-therapy
Time: Clinic is held every Tuesday and Thursday
Children’s Hospital of Southwest Florida
PACE (Pediatric After Cancer Experience Clinic)
9981 S. Healthpark Drive Suite 156
Ft Myers, FL 33908
Contact: Pam K. Wojciki, RN-CS, ARNP, CPON
Contact number: 293-432-3333
Time: Meets weekly; seen by clinic coordinator and 2 pediatric oncologists on site.
Nemours Children's Clinic-Jacksonville
FACT (Follow-up After Cancer Treatment)
807 Children's Way
Jacksonville, FL 32207
Contact: Monica Nebel, RN
Contact number: 407-650-7230
Physicians: Paul Gordon, MD, Judith Wall, MD and Nagasubramanian
Ramamoorthy, MD
Criteria: Two years off of therapy and up to age 21.
Georgia
Children’s Healthcare of Atlanta
AFLAC Cancer Survivor Program
5455 Meridian Mark Suite 400
Atlanta, GA 30342
Contact Person: Melissa Hamilton, Coordinator
Contact number: 404-785-1717
Physician: Lillian Meecham, M.D.
Criteria: Two years off of therapy and until 21 years old.
Time: Meets every Tuesday.
Illinois
Advocate Hope Children’s Hospital
POST Program (Pediatric Oncology Survivors in Transition)
4440 West 95th St.
Contact: Linda Rivard
Contact number: 708-684-4042
Physician: Sharad Salvi, M.D.
Criteria: Off treatment for three years and under 21.
Time: Meets on Tuesdays
Children’s Memorial Hospital
Pediatric STAR (Survivors taking Action & Responsibility) Program
2300 Children's Plaza
Chicago, IL 60614
Contact: Barbara Lockart
Contact number: 773-880-4584
Physician: Kimberly Dilley, M.D.
Criteria: Five years after diagnosis and two years after treatment completion. Patients up to age 23.
Times: Weekly on Wednesdays.
Children's Memorial Hospital/Northwestern Medical Faculty Foundation
STAR (Survivors taking Action & Responsibility) Program
675 North St. Clair
Chicago, IL 60611
Contact: Karen Kinahan, MS, RN, BC
Contact number: 312-695-4979
Physician: Aarati Didwania, M.D.
Criteria: Two years off of treatment and age 18 and older
Times: Tuesday afternoons Twice a month
University of Chicago
Childhood Cancer Survivor Center
5841 South Maryland Ave.
Chicago, IL 60637
Contact: Beverly Dooley, RN, MSN
Contact number: 773-843-8115
Physician: Program Director: Tara Henderson, MD, MPH
Criteria: Children, teens, and adults.
Time: meets weekly on Wednesdays.
Indiana
Riley Hospital for Children
702 Barnhill Dr.
Contact: Ann Haddix, RN, CPNP
Contact number: 317-274-2143 or 800-238-8399
Physician: Terry Vik, M.D.
Criteria: Two to three years after treatment completion and yearly follow-up.
Times: First and fourth Wednesday of the month.
Maryland
Johns Hopkins Oncology Centerr
Long-Term Follow-Up Clinic
600 N. Wolfe St.
Baltimore, MD 21287
Contact: Kathy Ruble
Contact number: 410-614-5062
Physician: Cindy Schwartz, M.D.
Criteria: Three to five years after diagnosis. There is no age limit.
Time: Meets on Tuesdays.
Johns Hopkins Kimmel Cancer Center Long Term Follow-up Clinic
Baltimore, MD 21231
410-955-8751 (Under 21 year olds); 410-955-8893 (Over 21 years old)
Coordinator: Kathy Ruble, RN
Physician Contacts: Robert J. Arceci, MD, PhD and Judith Karp, MD
Massachusetts
Dana-Farber Cancer Institute
David B. Perini, Jr. Quality of Life Clinic for Childhood Cancer Survivors
Boston, MA 02115
Contact: Roxie Young, Hannah Hewitt
Phone: 617-632-5124
Physician: Lisa Diller, M.D.
Criteria: Two or more years off treatment and person must have been diagnosed before their 21st birthday. There is no age limit.
Website: www.dana-farber.org/periniclinic
Dana-Farber Cancer Institute
Pediatric Neuro-Oncology Outcomes Clinic
44 Binney St. SW 331
Boston, MA 02115
Contact number: 617-632-2680
Coordinators: Florence Mujenda, Maura Ivens
Physician: Peter Manley, M.D.
Criteria: Sees children and adults.
Time: Tuesdays; sees children and adult survivors of brain and spinal cord tumors.
Michigan
DeVos Children's Hospital
The After-Care and Transition (ACT) Program
Division of Pediatric Hematology/oncology and Blood and Bone Marrow Transplantation
330 Barclay NE Suite 203
Grand Rapids, MI 49503
Contact: Colleen Gardner, Michele Ban Soelen
Contact number: 616-391-2238
Physician: Dr. David Freyer
Criteria: Serves both children and adult survivors of childhood cancer.
University of Michigan
Dept. of Pediatric Hematology/Oncology
Long-Term Follow-Up Clinic
1500 East Medical Center Dr.
Ann Arbor, MI 48109
Contact: Marcia Leonard, RN, PNP
Contact number: 734-936-9814
Physician: Valerie Castle, M.D., Raymond Hutchinson, M.D. and Rajen Mody, M.D.
Criteria: Three years off of treatment
Times: Friday
Minnesota
University of Minnesota Hospital- Fairview
Long-term Follow-up Clinic
Harvard St. and East River Rd.
Minneapolis, MN 55455
Contact: Nancy Youngren
Contact number: 612-626-2778
Physician: Daniel Mulrooney, MD
Criteria: 5 years after cancer diagnosis or 3 years from BMT
Time: Meets every Friday morning and Tuesday afternoon.
St. Paul; Children's Hospitals and Clinics of Minnesota
Mailstop 70-301
St. Paul, MN 55102
Contact: Vicki Schaufers, R.N., CNP- Peds
Contact number: 612-813-6543
Physician: Joanna Perkins, MD
Criteria: Children and young adults at least 3 years off therapy, up to age 24.
Time: On Mondays
Missouri
St. Louis Children's Hospital/ Washington University School of Medicine
Late Effects Clinic
One Children's Place
St. Louis, MO 63110
Contact: Jennifer Henry, B.A.
Contact number: (314) 454-6048
Physician: Robert Hayashi, M.D.
Criteria: Two years after treatment completion. Any age, as long as diagnosis was prior to age 21.
Times: Sees patients each Monday, Wednesday and Friday.
SSM Cardinal Glennon Children’s Medical Center
Long Term Follow-up Clinic
The Bob Costas Center
1465 South Grand Blvd.
St. Louis, MO 63104
Contact: Abigail Sharamitaro, MSN, RN, CPNP, CPON
Contact number: 314-268-4000
Physician: John Puetz, MD
Criteria: All agess
Time: Meets twice a month.
Children’s Mercy Hospitals and Clinics
Survive & Thrive Late Effects Clinic
2401 Gillham Road
Kansas City, MO 64108
Contact: Kathy Mick, M.Ed, RN
Contact number: 816-460-1053
Physician: Dr. Richard Shore
Criteria: 5 years from diagnosis, 2 years off therapy, up to 21 years old
Time: Meets once a month
New Jersey
Hackensack University Medical Centerr
Tomorrow’s Children’s Institution
Cure and Beyond
385 Prospect Ave.
Hackensack, NJ 07601
Contact number: 201-487-8987
Physician: Michael B. Harris, MD
Criteria: Sees both child and adult survivors of pediatric center.
Times: Meets three times a week.
New York
Memorial Sloan-Kettering Cancer Center
Long-Term Follow-Up Clinic
Department of Pediatric Oncology
1275 York Ave.
New York, NY 10021
Contact: Elaine Pottenger, MS, RN, CPNP
Contact number: 212-639-8138
Physician: Charles Sklar, MD and Kevin Oeffinger, MD
Criteria: Sees survivors of all ages.
Times: Meets three times a week.
Roswell Park Cancer Institute
Long-term Follow-up Clinic
Elm & Carlton St.
Buffalo, NY 14263
Contact: Theresa Carbone, MS, RN, CPNP
Contact number: 716-845-8011
Primary physician: Daniel M. Green, M.D.
Criteria: The clinic does not have an age limit.
Times: Every Tuesday
SUNY Upstate Medical University
Kids Now Off Therapy
Pediatric Hematology/Oncology
750 E. Adams St.
Contact: Susan Shaw, RN,MS,PNP
Contact number: 315-464-7229
Physician: Irene Cherrick, M.D.
Criteria: Five years since diagnosis and two years off treatment
Times: Twice a week-Tuesday and Friday
Center for Survivor Wellness
Herbert Irving Child and Adolescent Oncology Center
Columbia University Medical Center
161 Fort Washington Ave. Garden Suite
Contact: Clinical Coordinator, Solimar Curumi
Contact number: 212-305-2354
Physician: Jennifer Levine, MD, CSW
Time: Sees patients on Wednesdays
Generation of Survivors
The Pat Lyons Long Term Follow-up Program
The Cancer Center for Kids at Winthrop University Hospital
200 Old Country Road Suite 440
Mineola, NY 11501
Contact: Cathy Shimmel, RN, MA, CPON
Contact number: 516-663-9400
Physician: Mark Weinblatt, MD
Criteria: Sees survivors of all ages who are at least two years off treatment.
Time: Meets twice a month on Tuesdays
North Carolina
Duke University Medical Center
Pediatric Hematology/Oncology
Erwin Rd
Durham, NC 27710
Contact: Mary Ann Mallard
Contact number: 919-684-3401
Physician: Carlos DeCastro, M.D. (adults)
Criteria: Five years off of therapy
Times: Adults-third Thursday afternoon of the month and children and teens meets once a month on a Thursday.
Pediatric Hematology and Oncology Center at Levine Children’s Hospital
1001 Blythe Blvd. Suite 601
Charlotte, NC 28203
Contact: Dr. Kaplan’s NP is Kim Arnold; Dr. Golembe’s NP is Kathy Martin
Contact number: 704-381-9900
Physician: Dr. Joel Kaplan and Dr. Barry Golembe
Times: Each physician runs one afternoon clinic the third week of the month.
Ohio
Akron Children's Hospital
START UP (Staying Together After Recovery and Tapping Unlimited Potential)
One Perkins Square
Akron, OH 44308
Contact: Pam Jones, RN
Contact number: 330-543-8580
Physician: Sarah Friebert, M.D.
Criteria: Off treatment for two years
Times: Monthly
Children's Hospital Medical Center
ATP Five-Plus Clinic
333 Burnette Ave.
Cincinnati, OH 45229
Contact: Judy Correll, RN, CNCP
Contact number: 513-636-3512
Physician: Karen Burns, MD; Raj Nagarajan, MD
Criteria: Sees children, teens, and adult survivors
Times: Thursdays.
Conference: None scheduled, but they have done them in the past.
Nationwide Children’s Hospital
700 Children’s Drive
Hematology/Oncology
4th Floor OCC
Columbus, Ohio 43205
Contact: Katharine E. Johnston, APRN, BC, PNP
Contact Number: 614-722-3566
Physician: Amanda Termuhlen M.D.
Criteria: Currently is five years off therapy; no age limit.
Clinics are separate for NeuroOnc and BMT.
NeuroOnc meets 2nd Monday p.m.
Contact: Stephanie Lump, RN
Contact Number: 614-722-3243
Physician: Randall Olshefski M.D.
BMT Long Term meets 2nd Tuesday
Contact: Julie Clayton
Contact Number: 614-722-3558
Physician: Amanda Termuhlen M.D.
The Center for Survivors of Childhood Cancer
Rainbow Babies & Children’s Hospital
11100 Euclid Ave.
Cleveland, OH 44308
Contact number: 216-844-3070
Physician: Chad Jacobsen, MD
Criteria: All ages.
Time: Meets two times per month.
Pennsylvania
Children's Hospital of Philadelphia
Long-Term Follow-Up Clinic
34th and Civic Center Blvd.
Philadelphia, PA 19401
Contact-Wendy Hobbie, MSN, CRNP
Contact number: 215-590-4562
Physician: Anna Meadows, M.D. (director), Jill Ginsberg, M.D.
Criteria: Two years off therapy
Times: Weekly
Lance Armstrong Foundation Living Well After Cancer Program
The University of Pennsylvania Cancer Center
Abramson Cancer Center
3400 Spruce St.
Penn Tower Hotel #1428
Philadelphia, PA 19104
Contact: Linda Jacobs, PhD, RN
Contact number: 215-615-3371
Physician: Anna Meadows, M.D.
Criteria: Two years after treatment completion and no longer seen at a Children's Hospital, over 18 years of age.
Times: Weekly
South Carolina
Medical University of SC Children's Hospital
FACT (Follow-up after Cancer Treatment)
135 Rutledge Ave
PO Box 250558
Contact: Diane Dufour
Contact number: 843-792-2957
Physician: Jacquelyne Kraveka, MD
Criteria: Up to age 30
Time: Meets twice a month.
Tennessee
St. Jude’s After Completion of Therapy (ACT) Clinic
St. Jude’s Children’s Research Hospital
332 North Lauderdale; Mailstop 600
Memphis, TN 38105
Contact: Nancy Oliver, RN
Contact number: 901-495-3657
Physician: Dr. Melissa Hudson
Criteria: Five years after diagnosis and two years off therapy. Patient can be seen up to 10 years after diagnosis.
Times: Tuesday, Wednesday, Thursday each week.
Childhood Cancer Survivorship Program
2220 Pierce Ave. 397 PRB
Nashville, TN 37232-6310
Contact: Melissa Sumich, RN, BSN
Contact number: 615-936-8310
Physician: Sadhna Shankar, MD, MPH
Criteria: Sees survivors of all ages off therapy for at least 2 years or more than 5 years from diagnosis..
Time: Meets the second and fourth Fridays of the month.
Texas
Childhood Cancer Survivors Clinic
Christus Santa Rosa Children’s Hospital
333 N Santa Rosa St.
San, Antonio, TX 78207
Contact: Deanna Savo, RN
Contact Number: 210-704-2061
Physician: Shafqat Shah, MD
Time: Clinic is held on Tuesdays.
Children's Medical Center of Dallas
After the Cancer Experience
1935 Motor St.
Dallas, TX 75235-7794
Contact: Judy Watkins
Contact number: 214-456-2948
Nurse Practitioner: Debra Eshelman, RN, MSN, CPNP and Cindy Cochran, RN, CPNP
Physician: Dan Bowers, MD (sees children and teens))
Physician: Hong Xiao, MD and Alex King, MD (sees adults)
Criteria: Two years after completion of treatment. Adults transition to UT southwestern. The contact person is the same.
Times: Daily
The Lance Armstrong Foundation and Cook Children’s Medical Center in Fort Worth are Partners in the Life After Cancer Program (LACP)
Hematology & Oncology Center
901 Seventh Ave, Suite 220
Fort Worth, TX 76104
Contact: Lisa Bashore, MS, RN, CPNP
Contact number: 817-810-2125
Physician: Jeffrey C. Murray, MD
Criteria: Treats survivors up to age 30.
Dell Children’s Medical Center of Central Texas
LIVESTRONG Survivorship Center
1301 Barbara Jordan Blvd. Suite 402
Austin, TX 78723
Contact: Christina Allegretti, RN, CNPN
Contact number: 512-628-1910
Physician: James Sharp, MD and Sharon Lockhart, MD
Criteria: 2 years off therapy and up to 10 years after treatment or till they graduate.
Time: Meets Tuesdays, Wednesdays, and Thursdays.
MD Anderson Cancer Center
Long-Term Survivor Clinic
1515 Holcombe, Box 87
Houston, TX 77030
Contact: Nita Burrer, RN, ANP, CNS
Contact number: 713-792-5410
Physician: Alan Fields, M.D.
Criteria: Sees children, teens, and adult survivors of childhood cancer.
Times: Twice a week on Monday and Thursday.
Texas Children's Hospital
Late Effects Clinic
Hematology/Oncology
6621 Fannin St., CC-1510.21
Houston, TX 77030
Contact: Gaye Hamor, MSHA
Contact number:832-822-4727
Physician: JoAnn Dreyer, M.D.
Criteria: Five years since diagnosis or two and a half years off of treatment. There is no age limit.
Times: Wednesday and Friday
Virginia
Children’s Hospital of the King’s Daughter
Late Effects Program
Children’s Cancer and Blood Disorder Clinic
601 Children’s Lane
Norfolk, VA 23507
Contact: Ellen Vaser
Contact number: 757-668-7018
Physician: Rebecca Byrd, MD
Criteria: Sees patients two years after treatment ends and five years after diagnosis.
Time: Meets once a week on Wednesdays.
Washington
Children's Hospital & Regional Medical Center
ACCESS Long-Term Follow UP Program
4800 Sand Point Way
Seattle, WA 98105
Contact: Karen Wilkinson, ARNP
Contact number: 206-987-4752
Physician: Debra Friedman, M.D.
Criteria: Two years after treatment completion and up to age 21.
Times: Clinic meets Tuesday, Wednesday and Thursday
Fred Hutchinson Cancer Research Center Survivorship Program, a member of the LIVESTRONG Survivorship Center of Excellence Network
1100 Fairview Ave. N Mailstop LF-268
Seattle, WA 98117
Contact: Emily Jo Rajotte, MS
Contact number: 1-866-543-42722
Physician: Debra L. Friedman, MD
Criteria: Sees all survivors of pediatric and medical oncology regardless of age and place of treatment.
Washington D.C.
Long Term Survivor Clinic
Department of Hematology-Oncology
Children’s National Medical Center
111 Michigan Ave., NW 4th Floor
Washington, DC 20010
Contact: Holly Deluca
Contact number: 202-476-2410
Physician: Gregory H. Reaman, MD
Criteria: Sees all ages.
Time: Every Monday
Wisconsin
Children's Hospital of Wisconsin
Next Steps Clinic
9000 West Wisconsin Ave.
Milwaukee, WI 53226
Contact person: Louise Leuthner, RN
Contact number: 414-266-2774
Physician: Michael Kelly, M.D., Ph.D.
Other Providers: Deb Schmidt, RN, CPNP (Oncology), Lynette Anderson,
RN, CPNP (BMT)
For Oncology patients, we prefer to wait until patients are off therapy long enough that regular follow-up visits occur no more frequently than every six months (usually this is 2-3 years off therapy and/or five years from diagnosis); earlier consultations are available on request.
BMT patients may be seen as early as one year following transplant.
Criteria: Sees all survivors.
Time: Full clinic meets the second and fourth Wednesday afternoons each month; additional appointments with selected providers available the second and fourth Tuesday afternoons each month.
University of Wisconsin Children's Hospital
Caring for Life Clinic
600 Highland Ave.
Madison, WI 53792
Contact: Peggy Possin, RN
Contact number: 608-263-6200
Physician: Dr. Diane Puccetti
Criteria: Five years after diagnosis and two years off treatment
Time: Meets twice a month.
